{"id":24691,"date":"2025-12-19T10:03:55","date_gmt":"2025-12-19T16:03:55","guid":{"rendered":"https:\/\/medschool.vanderbilt.edu\/career-development\/?p=24691"},"modified":"2025-12-19T10:03:55","modified_gmt":"2025-12-19T16:03:55","slug":"aspire-internship-research-and-scientific-program-development-alagille-syndrome-alliance-algsa-remote-part-time","status":"publish","type":"post","link":"https:\/\/medschool.vanderbilt.edu\/career-development\/2025\/12\/19\/aspire-internship-research-and-scientific-program-development-alagille-syndrome-alliance-algsa-remote-part-time\/","title":{"rendered":"ASPIRE Internship: Research and Scientific Program Development, Alagille Syndrome Alliance (ALGSA), remote part-time"},"content":{"rendered":"<p style=\"text-align: center\"><strong>Research and Scientific Program Development <\/strong><\/p>\n<p style=\"text-align: center\">Alagille Syndrome Alliance (ALGSA)<br \/>\nFebruary-May, 2026<br \/>\nCollierville, TN (remote)<\/p>\n<p>The <strong><a href=\"https:\/\/alagille.org\/\">Alagille Syndrome Alliance (ALGSA)<\/a><\/strong> is the world\u2019s largest advocacy organization dedicated to supporting individuals and families affected by Alagille Syndrome (ALGS). Alagille Syndrome is a rare genetic disorder that impacts multiple organ systems and frequently presents with pediatric cholestasis along with significant lifelong complications. Our global community includes thousands of patients, caregivers, clinicians, scientists, and research partners who work together to advance knowledge, improve medical care, and strengthen quality of life.<\/p>\n<p>In 2024, the ALGSA launched a Scientific Research Network (ASRN). This global network elevates the patient voice in scientific research, identifies barriers to progress, and advances work across understudied and clinically impactful areas of Alagille Syndrome. The ASRN hosts scientific working groups and organ specific research focus groups, supports industry collaborations, builds research consortia, develops patient centered surveys, observational study designs, and fosters cross disciplinary scientific partnerships. Although focus groups play an important role within the ASRN, they represent only one component of our larger scientific strategy.<\/p>\n<h3><strong>About the Internship<\/strong><\/h3>\n<p>The ALGSA is seeking a motivated and independent PhD student or postdoctoral researcher who has a strong interest in rare disease research, patient engagement, and scientific program development. The internship will support a major initiative within the ASRN. The project assignment will be based on the intern\u2019s background, skills, and interests along with the current needs of the ASRN.<\/p>\n<p><strong>Possible project areas include:<\/strong><\/p>\n<ul>\n<li>Supporting the launch or management of an organ specific ASRN Research Focus Group in understudied areas of ALGS<\/li>\n<li>Conducting structured literature reviews to identify knowledge gaps in Alagille Syndrome<\/li>\n<li>Assisting with the design or analysis of patient centered surveys and associated research studies<\/li>\n<li><span style=\"font-size: 1.2rem\">Supporting the planning or execution of observational research<\/span><\/li>\n<li>Assisting in the coordination of scientific collaborations and multi stakeholder research activities<\/li>\n<\/ul>\n<h3><strong>Core Responsibilities<\/strong><\/h3>\n<p>The intern may contribute to the following:<br \/>\n\u2022 Literature reviews and research gap analysis<br \/>\n\u2022 Identification and outreach to scientific experts, clinicians, researchers, and patient partners<br \/>\n\u2022 Organization and facilitation of introductory calls or focus group meetings<br \/>\n\u2022 Development of scientific meeting materials including summaries, agendas, and action plans<br \/>\n\u2022 Support of observational study preparation or survey development<br \/>\n\u2022 Engagement in ASRN meetings, strategy discussions, and collaborative planning<br \/>\n\u2022 Preparation of scientific documentation to support organizational research goals<\/p>\n<h3><strong>Mentorship and Structure<\/strong><\/h3>\n<p>The intern will receive guidance from:<br \/>\n\u2022 The Scientific Research Coordinator at the Alagille Syndrome Alliance who has extensive experience in biotechnology and research leadership<br \/>\n\u2022 ALGSA Leadership or associates who provides high level direction on research priorities, stakeholder engagement, and program development<\/p>\n<p>This role provides meaningful exposure to the broader research ecosystem of the organization and is not limited to focus group development alone.<\/p>\n<p><strong>INTERNSHIP DETAILS<\/strong><\/p>\n<ul>\n<li>Internship will run February-May 2026, with the opportunity to extend pending review.<\/li>\n<li>Internship is unpaid<\/li>\n<li>Internship is part-time (~5 hours per week), remote<\/li>\n<\/ul>\n<p><strong>Applications due by 11:59pm Monday, January 19, 2026.\u00a0<\/strong><\/p>\n<p>To apply:<\/p>\n<ul>\n<li>Fill out the following ASPIRE Internship Application found here\u00a0<strong><a href=\"https:\/\/redcap.link\/ASPIREInternship_Application\">https:\/\/redcap.link\/ASPIREInternship_Application<\/a><\/strong><\/li>\n<li>Submit a resume and cover letter at the RedCap link above.\u00a0 Please submit documents\u00a0as\u00a0pdfs\u00a0with your\u00a0<strong>last name_Alagille_Resume_2026 <\/strong>or\u00a0<strong>last name_Alagille_coverletter_2026<\/strong><\/li>\n<li>Set up a meeting with Ashley Brady at (<strong><a href=\"mailto:ashley.brady@vanderbilt.edu\">ashley.brady@vanderbilt.edu<\/a><\/strong>) or Angela Zito\u00a0<strong>(<a href=\"mailto:angela.zito@vanderbilt.edu\">angela.zito@vanderbilt.edu<\/a>)<\/strong> prior to the application deadline.<\/li>\n<\/ul>\n<p>Your information will then be passed along to the organization who will contact you directly to schedule an interview.<\/p>\n<p>For\u00a0further\u00a0questions, please contact Ashley Brady (<a href=\"mailto:ashley.brady@vanderbilt.edu\"><strong>ashley.brady@vanderbilt.edu<\/strong><\/a>) or Angela Zito\u00a0<strong>(<a href=\"mailto:angela.zito@vanderbilt.edu\">angela.zito@vanderbilt.edu<\/a>).<\/strong><\/p>\n<p>\u2014\u2014\u2014\u2014\u2014\u2014-<\/p>\n<p>Please review ASPIRE Internship\u00a0FAQs:<strong>\u00a0<\/strong><a href=\"https:\/\/medschool.vanderbilt.edu\/aspire\/internship-faqs\"><strong>Found here<\/strong><\/a><br \/>\n\u200bFor\u00a0further\u00a0questions, please contact Ashley Brady (<a href=\"mailto:ashley.brady@vanderbilt.edu\"><strong>ashley.brady@vanderbilt.edu<\/strong><\/a>).<\/p>\n<p><strong>Eligibility requirements<\/strong><\/p>\n<ul>\n<li>Applicants must be a current Vanderbilt University PhD student or a current postdoctoral fellow.<\/li>\n<li>All PhD students must have completed all coursework for their degree prior to the start of the internship.<\/li>\n<li>Biomedical PhD students must also have passed their qualifying exams before the application deadline.<\/li>\n<li>Students and postdocs may not participate in more than one internship at a time. \u00a0More than one application may be submitted at a single time, but only one position can be accepted.<\/li>\n<li>If you are not in a department supported by the BRET office, we will also require that you complete a form guaranteeing PI approval to participate in this program.\u00a0Please contact Ashley Brady at\u00a0<a href=\"mailto:ashley.brady@vanderbilt.edu\"><strong>ashley.brady@vanderbilt.edu<\/strong><\/a>\u00a0for more information.<\/li>\n<li>If you are an international student or postdoctoral fellow, your visa status may affect your work eligibility.\u00a0Please contact Ashley Brady (<a href=\"mailto:ashley.brady@vanderbilt.edu\"><strong>ashley.brady@vanderbilt.edu<\/strong><\/a>)\u00a0to discuss this further.<\/li>\n<li>Must be authorized to work in the US<\/li>\n<\/ul>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Research and Scientific Program Development Alagille Syndrome Alliance (ALGSA) February-May, 2026 Collierville, TN (remote) The Alagille Syndrome Alliance (ALGSA) is the world\u2019s largest advocacy organization dedicated to supporting individuals and families affected by Alagille Syndrome (ALGS). Alagille Syndrome is a rare genetic disorder that impacts multiple organ systems and frequently presents with pediatric cholestasis along&#8230;<\/p>\n","protected":false},"author":20,"featured_media":5955,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[98],"tags":[69,29],"class_list":["post-24691","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-announcements","tag-career-options-nonprofit-administration-management","tag-internships"],"acf":[],"jetpack_featured_media_url":"https:\/\/cdn.vanderbilt.edu\/t2-main\/medschool-prd\/wp-content\/uploads\/sites\/5\/2018\/08\/Internships_58.jpg","jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/medschool.vanderbilt.edu\/career-development\/wp-json\/wp\/v2\/posts\/24691","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/medschool.vanderbilt.edu\/career-development\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/medschool.vanderbilt.edu\/career-development\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/medschool.vanderbilt.edu\/career-development\/wp-json\/wp\/v2\/users\/20"}],"replies":[{"embeddable":true,"href":"https:\/\/medschool.vanderbilt.edu\/career-development\/wp-json\/wp\/v2\/comments?post=24691"}],"version-history":[{"count":1,"href":"https:\/\/medschool.vanderbilt.edu\/career-development\/wp-json\/wp\/v2\/posts\/24691\/revisions"}],"predecessor-version":[{"id":24692,"href":"https:\/\/medschool.vanderbilt.edu\/career-development\/wp-json\/wp\/v2\/posts\/24691\/revisions\/24692"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/medschool.vanderbilt.edu\/career-development\/wp-json\/wp\/v2\/media\/5955"}],"wp:attachment":[{"href":"https:\/\/medschool.vanderbilt.edu\/career-development\/wp-json\/wp\/v2\/media?parent=24691"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/medschool.vanderbilt.edu\/career-development\/wp-json\/wp\/v2\/categories?post=24691"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/medschool.vanderbilt.edu\/career-development\/wp-json\/wp\/v2\/tags?post=24691"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}