A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States.
AUTHORS
Garrison
NA ,
Sathe
NA ,
Antommaria
AH ,
Holm
IA ,
Sanderson
SC ,
Smith
ME ,
McPheeters
ML ,
Clayton
EW ,
. Genetics in medicine : official journal of the American College of Medical Genetics. 2015 11 19; ().
- NIHMSID: 9815831
ABSTRACT
In 2011, an Advanced Notice of Proposed Rulemaking proposed that de-identified human data and specimens be included in biobanks only if patients provide consent. The National Institutes of Health Genomic Data Sharing policy went into effect in 2015, requiring broad consent from almost all research participants.
In 2011, an Advanced Notice of Proposed Rulemaking proposed that de-identified human data and specimens be included in biobanks only if patients provide consent. The National Institutes of Health Genomic Data Sharing policy went into effect in 2015, requiring broad consent from almost all research participants.
Tags: Faculty Publications 2015