MGC student Joan Kornkven advocates for future patients during Rare Disease Week on Captiol Hill 

Mar. 26, 2024—Every February, advocates and organizations from the rare diseases community meet in Washington, D.C., for Rare Disease Week. EveryLife Foundation hosts the conference that prepares attendees to meet with lawmakers and advocate for policies that impact rare diseases. This year’s Rare Disease Week resulted in 332 meetings with members of Congress and was attended by...

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