JOB DESCRIPTION:

The Research Program Manager (RPM) is responsible for overseeing all scientific research supported by TESS Research Foundation (TESS), SLC13A5 Epilepsy, a citrate transporter disorder, including research coordination, grant program oversight, community outreach, and scientific communication and cultivation. The position reports directly to the Executive Director and Scientific Advisory Board (SAB) Chair.

RESPONSIBILITIES:

• Manage grant program, including: writing requests for proposals, soliciting proposals, responding to inquiries, formatting applications, managing review process, negotiating contracts, tracking progress, maintaining database of publications, updating website, and following up at mid-term and project completion
• Liaison, monitor progress, and lead integration between key TESS initiatives including but not limited to NHS, Ciitzen, Taysha etc
• Support clinicians and scientists studying SLC13A5 through administrative work, highlight compilation, grant or manuscript writing, and coordination of key personnel
• Communicate with scientific and patient communities regarding current research and opportunities to participate, including managing forum, presenting at gatherings and updating newsletters, website and/or social media with news and advancements
• Plan workshops, webinars, meetings or conferences; coordinate logistics, scheduling and participant communications, as needed
• Work well with staff and Scientific Advisory Boards to place TESS in a position of prominence in clinical and basic science research
• Identify and develop relationships with highly qualified labs and researchers who might be interested in partnership or funding opportunities.
• Write and submit proposals for presentations and workshops or symposia at professional conferences
• Attend professional conferences and strengthen relationships with NIH, FDA, and peer organizations e.g. CZI, ELC, REN, NORD, Global Genes, ISAN and others
• Be aware of current research and trends on SLC13A5 and opportunities for TESS support
• Write Research Review synopses for new publications as they come out
• Prepare periodic reports and records on program activities, progress, status or other special reports for management
• Evaluate program effectiveness to develop improved methods, processes, and efficiencies

MINIMUM QUALIFICATIONS:  

• PhD, MD, or other post-graduate 4 year degree in the neuroscience or related field
• 2 years clinical or basic science research experience
• Experience working in a research or academic environment preferred.
• Excellent project management skills and attention to detail

DESIRED QUALIFICATIONS:  

• Knowledge of SLC13A5, epilepsy, and/or other rare neurological disease
• Understanding of translational research and design and management of clinical studies
• Understanding of NIH rating scale, peer review, and statistics calculations
• Excellent technical computer skills, competent with Microsoft Office, Google Tools, project management software, and database software; good troubleshooting and conflict resolution skills.
• Strong written and oral communications skills, especially related to science communications; grant writing a plus
• Solid organizational and analytical skills
• Proven management of time and program plans, ability to work efficiently and independently plan time, meet deadlines, take initiative,  and follow through on tasks accomplish goals
• Ability to foster a collaborative working environment, encouraging the integration of others’ ideas
• Empathy for people with rare diseases;
• Possess hustle, integrity, honesty and a sense of humor

SALARY/BENEFITS:

• Part-time to full time.
• Salary commensurate with experience.
• No health benefits.
• Paid Vacation/Leave policy.
• Start immediately.
• TESS is based in Menlo Park, California; This job can be completed remotely. Min travel (4x/yr.) required pending Covid safety.

To learn more about TESS Research Foundation, go to tessresearch.org

If interested, send letter of interest, availability, salary requirements,  and resume to Kim Nye: kim@tessfoundation.org